Introduction to Autism
• Autism Spectrum Disorder Basic Introduction for Families:
https://www.ocali.org/project/asd-a-basic-introduction-for-families
• Ohio’s Parent Guide to Autism Spectrum Disorder:
https://www.ocali.org/project/ohio_parent_guide_to_ASD
• OAR Parent’s Guide to Research
https://researchautism.org/product/a-parents-guide-to-research/
• OCALI ASD Strategies in Action Certification
https://autismcertificationcenter.org/
• Interagency Work Group on Autism
https://iwg-autism.org/
Diagnosis and Assessment:
• CDC Autism Screening + Diagnosis
https://www.cdc.gov/ncbddd/autism/screening.html
• Organization for Autism Research A Parent’s Guide to Assessment
https://researchautism.org/product/a-parents-guide-to-assessment/
• Autism Diagnosis Education Project
https://www.ocali.org/project/adep
• First Diagnosis Toolkit
https://www.milestones.org/resources/tool-kits/first-diagnosis-tool-kit
• Adult Diagnosis Toolkit
https://www.milestones.org/resources/tool-kits/adult-diagnosis-tool-kit
• OAR Parent’s Guide to Assessment
https://researchautism.org/product/a-parents-guide-to-assessment/
• Autism Diagnosis Education Project
https://www.ocali.org/project/adep
• Information for Newly Diagnosed
https://autismsociety.org/resources/new-autism-diagnosis/
Early Intervention:
• New to Autism
https://www.cdc.gov/ncbddd/autism/screening.html
• Help Me Grow
https://www.milestones.org/resources/community-resource-center/help-me-grow-home-visiting–ohio-department-of-health
• Ohio Early Intervention
https://ohioearlyintervention.org/
• Ohio Guidestone
https://ohioguidestone.org/services/child-mental-health-services/autism-treatment-services/
• Helping your child with autism thrive
https://www.helpguide.org/articles/autism-learning-disabilities/helping-your-child-with-autism-thrive.htm
• NIH Parent Coaching in Early Intervention
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10469633/
• Early Intervention Activities for Babies
https://www.parents.com/baby/health/autism/early-autism-intervention-activities-for-babies/
Educational Support:
• The Arc
https://www.cdc.gov/ncbddd/autism/screening.html
• School Choice Ohio
scohio.org
• Ohio Coalition for Education of Children with Disabilities
https://www.milestones.org/resources/community-resource-center/help-me-grow-home-visiting–ohio-department-of-health
• Ohio Department of Education
• https://ohioearlyintervention.orghttps://education.ohio.gov/Topics/Special-Education/
• State Support Team Regions/Contacts
• SCERTS® is an educational model
https://ohioguidestone.org/services/child-mental-health-services/autism-treatment-services/
• Autism Scholarship
https://www.helpguide.org/articles/autism-learning-disabilities/helping-your-child-with-autism-thrive.htm
• Ohio Legal Help
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10469633/
• Individualized Education Programs (IEPs)
https://parentmentor.osu.edu/iep/
• 504 Plans
https://kidshealth.org/HumanaOhio/en/parents/504-plans.html#:~:text=The%20main%20difference%20is%20that,child%20learns%20but%20IEPs%20can
• Transitioning to adulthood and post-secondary education
•https://www.ocali.org/project/family_support
•https://education.ohio.gov/Topics/Special-Education/Federal-and-State-Requirements/Secondary-Transition-and-Workforce-Development
Community Resources:
• Avenues for Autism
https://avenuesforautism.org/social-programming/
• Stepping Stones
https://steppingstonesohio.org/
Legal Rights and Advocacy:
• Disability Rights Ohio
https://www.disabilityrightsohio.org/
• Department of Disabilities
https://dodd.ohio.gov/your-family/advocacy/Kit_rights
• Ohio Association of County Boards
https://www.oacbdd.org/
• Hickman & Lowder, Attorneys specializing in special needs
http://www.hickman-lowder.com
• Resch, Root, Philipps and Graham, LLC
Financial Planning
• Information
https://thearc.org/free-financial-planning-resources-confirmation/?utm_source=cc&utm_medium=email&utm_campaign=cfp
• Special Needs Trusts & ABLE Accounts
•http://www.hickman-lowder.com
•https://www.pglawohio.com
•https://frnohio.org/directory/listing/special-needs-trusts-and-able-accounts
•https://www.daytonestateplanninglaw.com/special-needs-planning/
• Services
https://www.milestones.org/resources/community-resource-center/fortitude-wealth-management-beachwood
• Grants
• iTaalk Autism Foundation – Grant Database www.itaalk.org
• Avenues for Autism – SuzaAne Tyner Autism Fund – www.avenuesforautism.org
• Community Fund Ohio – www.cfmf.org/grants
• Operation Save the Lost – www.operationsavethelost.com
• Parker’s Purpose – www.parkerspurpose.net
• Pierce’s Crew Foundation – www.piercescrew.org
• Small Steps in Speech – www.smallstepsinspeech.org
• The Orange Effect – theorangeeffect.org
Medical and Healthcare:
• Ohio Autism Insurance Coalition
https://www.asdohio.com/
• Co-occurring conditions
• https://www.autismempowerment.org/understanding-autism/co-existing-conditions/
• https://autism.org/comorbidities-of-autism/
• Healthcare considerations for Autistic adults
https://health.osu.edu/community-health/health-and-society/health-care-for-autistic-adults
Adult Services and Employment:
• Ohio Developmental Disabilities Council
www.virtualcil.net/cils/query-iandr.php?state=oh
• Independent Living Centers in Ohio
www.virtualcil.net/cils/query-iandr.php?state=oh
• Adult Housing
•https://www.safehavenfarms.org/what-we-do
•https://www.lifeworksautism.org/SupportedLiving
•https://avenuesforautism.org/adult-residential/
• Ohio Communication Disability Law + Registration
https://bit.ly/3xg0TOk
• US Department of Labor Office of Disability Employment Policy:
https://www.dol.gov/odep/topics/disability.htm
• Opportunities for Ohioans with Disabilities
https://ood.ohio.gov/information-for-individuals
• APSE: Advancing Employment. Connecting People.
www.apse.org
• Career One Stop
www.careeronestop.org
• Think College
www.thinkcollege.net
• National Collaborative on Workforce and Disability
www.ncwd-youth.info
Research and Advancements:
• CDC Research
https://www.chconline.org/resourcelibrary/what-is-the-latest-research-on-autism
• Current autism research.
• New treatments and advancements in understanding autism.
Family Support:
ASO actively participated in establishing the Autism Scholarship program, the Communication Disability database, and adding those with disabilities to the Silver Alert system.
The Autism Society of Ohio (ASO) advocates to improve Ohio’s disability system for a better quality of life for individuals with Autism and their families. ASO is a coalition of the Ohio affiliates of the Autism Society of America and includes the Autism Societies of Central Ohio, Greater Akron, Greater Cleveland, Dayton, Mahoning Valley, and Northwest Ohio. Together, we cover 100% of the state and thousands of individuals and families living with Autism and other developmental disabilities in our communities.
YOUR HELP IS NEEDED NOW!
Starting June 20th ~ Please call or email your state legislator and members of the Joint Medicaid Oversight Committee (JMOC)!
1. Send this Message to JMOC
Let Members know that children with Autism are losing important Applied Behavioral Analysis (ABA) treatment because of gaps in Ohio’s Medicaid system that need to be fixed! Ask members to please hold a hearing to address these barriers families and providers are enduring. You can email the attached fact sheet and letter to Sen. Romanchuk, Chair – romanchuk@ohiosenate.gov.
2. Send this Message to your State Legislator
Applied Behavioral Analysis is an important treatment for children with Autism, but due to Ohio’s patchwork system, children who have Medicaid are losing ABA. Please support changes to the Ohio Medicaid system that remove barriers to ABA, helping children with Autism with educational and behavioral treatments that improve their long-term quality of life.
HOW TO FIND YOUR LEGISLATOR
Step 1: Find your nine-digit zip code for your home, clinic, and work HERE.
Step 2: Find Your Legislator. Enter your nine-digit zip code in the two spots for zip codes (first 5, then the extra 4 digits) at the Ohio House and Senator Lookup Page. You do not need a street address. This is where you find the legislator’s name and district number.
Step 3: Email Address to the Legislator. Follow these email formats. Medicaid & Autism: Request hearing in JMOC (Medicaid Oversight)
House of Representative emails are rep##@ohiohouse.gov (## = House district number)
Senate emails start with the legislator’s last name, such as root@ohiosenate.gov
Contact Information for Joint Medicaid Oversight Committee
Sen. Romanchuk, Chair romanchuk@ohiosenate.gov | Rep. Holmes, Vice-Chair rep97@ohiohouse.gov |
Sen. Huffman huffman@ohiosenate.gov | Rep. Liston, Ranking Member rep8@ohiohouse.gov |
Sen. Ingram ingram@ohiosenate.gov | Rep. Gross rep45@ohiohouse.gov |
Sen. Reynolds reynolds@ohiosenate.gov | Rep. Lipps rep55@ohiohouse.gov |
Sen. Smith smith@ohiosenate.gov | Rep. Thomas rep25@ohiohouse.gov |